Colombian Rare Disease Patients Demand Faster Diagnoses and Better Access to Care

Colombian patients with rare disease are advocating for quicker diagnosis and improved access to care, highlighting systemic issues at Raremed 2025 that demand urgent public policy reform.

• During the Raremed 2025 congress in Colombia, patients highlighted that diagnosis of rare disease can take between five to 30 years, severely impacting lives.
• Experts, including the chief executive officer of a leading health organization, emphasized the need for innovation in treatments for rare disease to ensure timely access to care.
• The event addressed how the lengthy diagnosis process for rare disease patients in Colombia mirrors challenges faced in the United States Congress, stressing the need for collaborative solutions.